Publications

Rethinking ME

The findings of this report highlight that there has been a long-term disconnect between the treatment deserved by people with ME and what they experience in reality.

“We view these recommendations as a starting point on which to build creative strategies across the governments of the UK, service providers and research institutions for the transformation of our society’s approach to ME. Furthermore, we wish to see the UK take a pioneering stance towards ME research and a compassionate attitude towards people with ME at a time when we are seeing an increasing trend in the development of ME-like symptoms as a result of COVID-19.”

“People with ME require major cultural and policy change to take place within all professions associated with their care and support.”

Rethinking ME
A report by the All-Party Parliamentary Group on Myalgic Encephalomyelitis

The APPG on ME spent over a year taking evidence from patients, healthcare professionals and charities to produce this report. The 20 recommendations in this report should be considered the starting position for Government policy.