Date: 16 June 2020
The purpose of this evidence session which was to highlight the condition of ME in children and to use expert contributions to produce a report paper on the key issues impacting ME sufferers.
Dr Charles Shepherd, ME APPG Secretariat, briefly summarised the key issues which stem from lack of education and information going out to professionals working with children with ME. Dr Shepherd mentioned that the NICE 2007 guidelines barely even mentioned children, citing ME incorrectly as a behavioural problem rather than a neurological disorder.
Presentations were given by:
- Dr Nigel Speight, expert in paediatric ME, charity medical advisor
- The parents of two children with ME
- Tony Crouch, social worker and NICE ME guideline review panellist
This was followed by questions from the parliamentarians in attendance.
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