Date: 15 November 2023 The All-Party Parliamentary Group for ME met at 2pm to discuss ME research and the DHSC Delivery Plan. Sonya Chowdhury updated the Group on the progress of the DHSC’s consultation, before discussing plans to launch a ‘Parliamentary Champions’ programme to raise the profile of ME in Parliament. The Group also agreed […]
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Date: 06 February 2024 The fifth Annual General Meeting of the All-Party Parliamentary Group on ME took place on Tuesday 20th February from 2:30pm – 3:30pm. The AGM was followed by an APPG meeting, which revisited the APPG’s Report ‘Rethinking ME’, considering the action that has been taken by the Department of Health and Social
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Date: 14th June 2023 The All-Party Parliamentary Group meeting for Severe ME took place on 14th June 2023. The meeting included: Read the full minutes:
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Date: 10th May 2023 This was the fourth Annual General Meeting of the All-Party Parliamentary Group on ME. The AGM was followed by an APPG meeting which included: Read the minutes
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Date: 25th May 2022 The All-Party Parliamentary Group (APPG) on ME met at 3pm on Wednesday 25 May to launch their first report, Rethinking ME. MPs from across the party political divide attended, as well as people with ME, charity representatives and others. “At this event, we will reflect on the progress being made to
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Date: 29th March 2022 This was the third Annual General Meeting of the All-Party Parliamentary Group on ME. Areas covered during this meeting included the acheivements of the APPG, election of officers for the coming year, a programme of work for the coming year and changes to the secretariat. In looking back on acheivements of
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Date: 24th November 2021 The purpose of this meeting was to give Parliamentarians the opportunity to learn about the new and long-waited ME guideline by the National Institute for Health and Care Excellence (NICE) and the impact this will have on clinical services. The sad death of Maeve O’Neill to ME, the daughter of Sean
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Date: 19th April 2021 This was the second Annual General Meeting of the All-Party Paliamentary Group (APPG) on ME. Carol Monaghan MP summarised the group’s activities over the past year which included four evidence sessions looking at the key issues impacting people with ME in the UK. Officers were then nominated for the APPG, and
AGM – The impact of the COVID-19 pandemic on the ME community Read More »
Date: 17th November 2020 Carol Monaghan MP introduced the topic of this meeting as diagnosis and management. Twenty parliamentarians (or their representatives) were in attendance. Dr Charles Shepherd gave an overview of the new ME/CFS guideline from the National Institute for Health and Care Excellence. Presentations were given by: The parent of an adult daughter
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Date: 7th October 2021 This meeting was used to explore the economic and welfare benefits issues facing people with ME. Presentations were given by: Ann Innes, Welfare Rights Adviser, ME Association Person with ME Dr William Weir, Consultant Physician, Medical Adviser These presentations covered the disablity benefits system, personal experience of applying for benefits, and private insurance systems
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