Meetings

Annual General Meeting 2023

Date: 10th May 2023 This was the fourth Annual General Meeting of the All-Party Parliamentary Group on ME. The AGM was followed by an APPG meeting which included: Read the minutes

Rethinking ME – report launch

Date: 25th May 2022 The All-Party Parliamentary Group (APPG) on ME met at 3pm on Wednesday 25 May to launch their first report, Rethinking ME. MPs from across the party political divide attended, as well as people with ME, charity representatives and others. “At this event, we will reflect on the progress being made to […]

Annual General Meeting 2022

Date: 29th March 2022 This was the third Annual General Meeting of the All-Party Parliamentary Group on ME. Areas covered during this meeting included the acheivements of the APPG, election of officers for the coming year, a programme of work for the coming year and changes to the secretariat. In looking back on acheivements of […]

The new NICE guideline and the future of ME medical care

Date: 24th November 2021 The purpose of this meeting was to give Parliamentarians the opportunity to learn about the new and long-waited ME guideline by the National Institute for Health and Care Excellence (NICE) and the impact this will have on clinical services. The sad death of Maeve O’Neill to ME, the daughter of Sean […]

AGM – The impact of the COVID-19 pandemic on the ME community

Date: 19th April 2021 This was the second Annual General Meeting of the All-Party Paliamentary Group (APPG) on ME. Carol Monaghan MP summarised the group’s activities over the past year which included four evidence sessions looking at the key issues impacting people with ME in the UK. Officers were then nominated for the APPG, and […]

Diagnosis and Management

Date: 17th November 2020 Carol Monaghan MP introduced the topic of this meeting as diagnosis and management. Twenty parliamentarians (or their representatives) were in attendance. Dr Charles Shepherd gave an overview of the new ME/CFS guideline from the National Institute for Health and Care Excellence. Presentations were given by: The parent of an adult daughter […]