Rethinking ME – report launch

Date: 25th May 2022

The All-Party Parliamentary Group (APPG) on ME met at 3pm on Wednesday 25 May to launch their first report, Rethinking ME. MPs from across the party political divide attended, as well as people with ME, charity representatives and others.

“At this event, we will reflect on the progress being made to improve recognition and understanding of ME amongst the medical profession and other relevant professions. We will hear directly from people with ME on their desire for better care and discuss the steps needed to positively transform the way people with ME are treated in the UK.”

Carol Monaghan MP, Chair of the APPG on ME

All Westminster MPs (and some members of the House of Lords) were invited by Carol Monaghan MP to come to this meeting, and people with ME were asked to encourage their MP to attend.

Moving speeches were given by Carol Monaghan MP, the Rt Hon Sajid Javid MP and Sonya Chowdhury, CEO of Action for M.E.

Thr Rt Hon Sajid Javid MP spoke of a young family member who he had seen go from a vibrant active child to being debilitated by ME. He reiterated his pledge to develop a delivery plan for ME. This event was also attended by staff from the Department for Heath and Social Care and the Department for Work and Pensions.

MPs from across the political spectrum attended with many noting they had constituents living with ME who had asked them to attend. They each left with a copy of the report “Rethinking ME” and were given the opportunity to learn more about this disease and the changes people with ME need by talking to charity representatives and people with ME in attendance.


Rethinking ME

Click to download the full report.