Meetings
Date: 24th November 2021 The purpose of this meeting was to give Parliamentarians the opportunity to learn about the new and long-waited ME guideline by the National Institute for Health and Care Excellence (NICE) and the impact this will have on clinical services. The sad death of Maeve O’Neill to ME, the daughter of Sean […]
Date: 19th April 2021 This was the second Annual General Meeting of the All-Party Paliamentary Group (APPG) on ME. Carol Monaghan MP summarised the group’s activities over the past year which included four evidence sessions looking at the key issues impacting people with ME in the UK. Officers were then nominated for the APPG, and […]
Date: 17th November 2020 Carol Monaghan MP introduced the topic of this meeting as diagnosis and management. Twenty parliamentarians (or their representatives) were in attendance. Dr Charles Shepherd gave an overview of the new ME/CFS guideline from the National Institute for Health and Care Excellence. Presentations were given by: The parent of an adult daughter […]
Date: 7th October 2021 This meeting was used to explore the economic and welfare benefits issues facing people with ME. Presentations were given by: Ann Innes, Welfare Rights Adviser, ME Association Person with ME Dr William Weir, Consultant Physician, Medical Adviser These presentations covered the disablity benefits system, personal experience of applying for benefits, and private insurance systems […]
Date: 16 June 2020 The purpose of this evidence session which was to highlight the condition of ME in children and to use expert contributions to produce a report paper on the key issues impacting ME sufferers. Dr Charles Shepherd, ME APPG Secretariat, briefly summarised the key issues which stem from lack of education and […]
Date: 3rd March 2020 The aim of the meeting was to hear from experts in the area of ME biomedical research and funding and use their contributions to produce a report paper on key issues impacting ME sufferers. There were presentations from: Professor Julia Newton, Newcastle University Professor Chris Ponting, University of Edinburgh Dr Eliana Lacerda, UK ME Biobank This […]