Date: 24th November 2021
The purpose of this meeting was to give Parliamentarians the opportunity to learn about the new and long-waited ME guideline by the National Institute for Health and Care Excellence (NICE) and the impact this will have on clinical services.
The sad death of Maeve O’Neill to ME, the daughter of Sean O’Neill, a Chief reporter at the Times who has worked extensively on highlighting the issues facing the ME community, was noted at the beginning of this meeting and condolences raised.
Andrew Morris, Chair of Forward-ME, also gave an update of the role of this organisations moving forward.
The main bulk of the meeting was then begun, with questions directed to the three speakers in attendance:
- Dr Paul Chrisp, Director of the NICE Centre for Guidelines
- Dr Peter Barry, Consultant Clinical Advisor, NICE centre for guidelines, and Chair of the NICE ME/CFS Guideline Committee
- Sonya Chowdhury, Chief Executive of Action for ME
Topics covered included the delay in publishing the guideline and the importance of people with ME staying within their energy envelope, amongst other things.
Read the full minutes: