Date: 25th May 2022 The All-Party Parliamentary Group (APPG) on ME met at 3pm on Wednesday 25 May to launch their first report, Rethinking ME. MPs from across the party political divide attended, as well as people with ME, charity representatives and others. “At this event, we will reflect on the progress being made to […]
Rethinking ME – report launch Read More »
Date: 29th March 2022 This was the third Annual General Meeting of the All-Party Parliamentary Group on ME. Areas covered during this meeting included the acheivements of the APPG, election of officers for the coming year, a programme of work for the coming year and changes to the secretariat. In looking back on acheivements of
Annual General Meeting 2022 Read More »
Date: 24th November 2021 The purpose of this meeting was to give Parliamentarians the opportunity to learn about the new and long-waited ME guideline by the National Institute for Health and Care Excellence (NICE) and the impact this will have on clinical services. The sad death of Maeve O’Neill to ME, the daughter of Sean
The new NICE guideline and the future of ME medical care Read More »
Date: 19th April 2021 This was the second Annual General Meeting of the All-Party Paliamentary Group (APPG) on ME. Carol Monaghan MP summarised the group’s activities over the past year which included four evidence sessions looking at the key issues impacting people with ME in the UK. Officers were then nominated for the APPG, and
AGM – The impact of the COVID-19 pandemic on the ME community Read More »
Date: 17th November 2020 Carol Monaghan MP introduced the topic of this meeting as diagnosis and management. Twenty parliamentarians (or their representatives) were in attendance. Dr Charles Shepherd gave an overview of the new ME/CFS guideline from the National Institute for Health and Care Excellence. Presentations were given by: The parent of an adult daughter
Diagnosis and Management Read More »
Date: 7th October 2021 This meeting was used to explore the economic and welfare benefits issues facing people with ME. Presentations were given by: Ann Innes, Welfare Rights Adviser, ME Association Person with ME Dr William Weir, Consultant Physician, Medical Adviser These presentations covered the disablity benefits system, personal experience of applying for benefits, and private insurance systems
Economic Issues and Welfare Benefits Read More »
Date: 16 June 2020 The purpose of this evidence session which was to highlight the condition of ME in children and to use expert contributions to produce a report paper on the key issues impacting ME sufferers. Dr Charles Shepherd, ME APPG Secretariat, briefly summarised the key issues which stem from lack of education and
Date: 3rd March 2020 The aim of the meeting was to hear from experts in the area of ME biomedical research and funding and use their contributions to produce a report paper on key issues impacting ME sufferers. There were presentations from: Professor Julia Newton, Newcastle University Professor Chris Ponting, University of Edinburgh Dr Eliana Lacerda, UK ME Biobank This
Biomedical Research and Funding Read More »
Date: 14 January 2020 This was the inaugural meeting of the All-Party Parliamentary Group on ME. The aim of this first meeting was to elect new officers and register the APPG. Carol began the meeting by explaining her interest in ME and the aim of the new APPG to produce a report paper on key
Annual General Meeting 2020 Read More »
